For the past seven years, I’ve had the extraordinary privilege of sharing the stage with the remarkable Kenneth Hobby as he leads Cure SMA on its unwavering quest for a cure. Every time I’ve joined him in this mission, I’m reminded of the profound importance of the work being done and the incredible strength of the SMA community. Just think about that phrase for a moment: a cure for those affected by spinal muscular atrophy. It’s not just a dream—it’s a tangible, achievable goal that brings hope to thousands of families across the country and around the world.
Spinal muscular atrophy (SMA) is a rare genetic condition that affects the motor nerve cells in the spinal cord, leading to muscle weakness and, in severe cases, impacting basic functions like walking, eating, and even breathing. But here’s the truly inspiring part: thanks to organizations like Cure SMA and the incredible people who support their work, we are closer than ever to breakthroughs that could transform lives. From funding cutting-edge research to providing critical support services for families, Cure SMA is at the forefront of the fight to end this disease.
Over the years, I’ve witnessed firsthand the dedication and passion of Kenneth Hobby and the entire Cure SMA team. Their commitment to finding a cure is unwavering, and their efforts are a beacon of hope for everyone affected by this condition. Every event, every fundraiser, and every dollar raised brings us one step closer to a world where SMA no longer exists.
What stands out most to me is the resilience and unity of the SMA community. Families, advocates, researchers, and supporters all come together with a shared purpose—to give children and adults affected by SMA the chance to lead full, vibrant lives. It’s a testament to what can be achieved when we work together, driven by compassion and a belief in the power of science and humanity.
Tonight, as we gather to raise awareness and funds, I’m reminded that this mission is far from over. The journey toward a cure requires continued support, both from individuals and the broader community. It’s a collective effort that demands persistence, generosity, and hope. Together, we can accelerate progress, expand access to life-changing treatments, and ultimately find a cure for SMA.
But none of this is possible without you. Your contributions are the lifeblood of this mission, fueling research advancements, family support programs, and advocacy efforts that make a real difference. Whether you’ve been a longtime supporter or are just learning about Cure SMA, your involvement matters. Every donation, no matter the size, brings us closer to a future free from SMA.
Please consider donating today at curesma.org. By supporting Cure SMA, you’re helping to fund critical research, provide essential resources to families, and create a brighter future for those affected by spinal muscular atrophy. Together, we can turn hope into action and make the dream of a cure a reality.
Let’s continue to stand with Cure SMA, inspired by their vision and motivated by the strength of the community they serve. Join us in this fight, and together, we will make a difference—one step, one discovery, and one life at a time.
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